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Tuesday, April 22, 2008

Horse Shit

Today was not a good day. Today, we found out that Cade suffered a moderate-severe intraventricular hemorrhage sometime during/after birth. What does that mean? All in all, it means that Cade has a 50% chance of having a completely normal life. The other 50% means that he would suffer from some sort of developmental disorder.

In the short-term, they need to find out if he is continuing to bleed or not. We will know in a week at the next crainial ultrasound. If he doesn't bleed anymore, the clots should be disolved by the body. If he does bleed more, he may need a small line that leads to a resivoir on the top of his head so the crainial pressure can be relieved. Later, if the need for drainage continues a shunt could be placed from his head down into his bowel.

On the bright side of things, since this PROBABLY happened at delivery, the fact that he continues to improve in terms of his over all health makes me very hopeful that he will someday have a fullfilling life.

Jill and I are both dragging butt at this point. Here are some pics from today:

The Dr.'s rendition of what happened


Cade Doing His Best Dr. Evil

Sunday, April 20, 2008

Finally, A Respite

Pics from today.



Yesterday was a trip. Nurse Ratchet a.k.a Nurse Nancy really kicked Jill's butt. By the end of the day, Jill had sat up, gotten out of bed, washed up a bit, had her catheter removed (which then requires many more bathroom trips), pumped, gone to see her little lovin' man at Children's, and ate some real food. Oh, and the she is now off of the IV pain killers too.

Couple all of that with visits from Grandpa Reg, Grandma Linda, Auntie Marcy, Grandpa Phil, Grandma Barb, Uncle Andy, and Auntie Jill. Throw in some phone calls from concerned, willing to help, loved ones, and you have the makings for a whirlwind day.

The icing on the cake is that. for the most part, she and I slept well too.

Today brings even more good news. We got a call from our Dr. and were informed that Cade is doing even better. He is on room air, off of the oscillator (and on a regular ventilator) , being weened from the nitric oxide, and his while blood cell count is going up (which means that he is mounting a response to infection). It looks like everyone's well-wishes and prayers are paying off.

Today, we are going to get Jill showered and get her to see her little Caders at least one more time.

Finally, during our morning pump, saw some colostrum.

TTFN,

Sean

PS Cade is losing water weight which is a good thing and is to be expected.

Friday, April 18, 2008

Um... Yeah... We are going to need you to come in on Friday.

Sean here again.

On Friday, April 18, 2008 Cade Burton Bober was born unto this world. It may never be the same again! Hurray!

Here are some pics for your viewing pleasure.








He is 930g which is about 2.1 pounds. He is 14 inches long. If he were a walleye, I would say he is a keeper. Since he is our son, I KNOW he is a keeper no matter what his size.

Why so soon?

About 25 hours ago, Jill's temp spiked. The nurses and doctors feared an infection. So, they had to take the baby via c section in order to save them both. It was the right thing to do. Jill did have an infection. Cade probably does too. But, we will have to wait one more day for the cultures to develop to be sure what kind of infection.

As of this moment, Jill is sleeping at Abbott Northwestern (5th Floor, Station 54, Room 5477). She is fighting her infection and c section pain. However, she is recovering well. Her fever may have broken. Let's hope so.

As for Cade, he is in the best place on the face of this world at the moment...Children's Hospital. His vitals are good and a million people are praying for him. But, the Dr. that delivered him is "concerned" and the nurses say, "take it day by day".

They have also told me that it is up to him to mount a defense and get his immune system ramped up.

Cade, please keep on fighting. We all love you very much and want you to grow up to live a happy, healthy, productive, life.


With Love,

Sean and Jill

Wednesday, April 9, 2008

Life Turned Upside Down...

Sean here.

Where to begin?

Yesterday, after getting out of the shower, I walked upstairs, wearing nothing more than a smile and a pair of slippers, to find Jill on her cell phone. She was on the phone with someone, which was odd but not out of the realm of possibility, and was providing them with information. While she talking, she was guiding me by the shoulder to what I thought was going to be some sort of uber cute scene with the puppies. To my surprise, I was guided to Jill's bathroom. In the toilet was a bit of bloody mucus and toilet paper.

I thought to myself that this, although alarming and worthy of further investigation, was going to be a classic case of "spotting". Jill got off the phone with the fine folks at Diamond Women's Center who wanted to see her for at 10:45 ultrasound. I called into the sick line at work to let them know that Jill was having some issues and that I wouldn't be in. Jill retired to the couch for some rest. From there I SSLed into work to download more drivers for the next rev of the Vista image, feeling safe all would turn out fine during the ultrasound.

We left the house at about 10:30 and arrived just on time. After a short wait in line we were checked in. A few minutes after that, Jill was on the ultrasound table. Conversation with the technician was somewhat curt. But, all in all, the conversation flowed well which Jill and I took to be a good sign. We were then directed back out into the waiting to wait and see Dr. Chow who was going to be our Dr. for the moment because Dr. Angelats was on vacation.

After what seemed to be an eternity, the good Dr. arrived and wanted to see Jill naked (join the crowd). After a very brief pelvic exam, we were told that Jill's water may have broken and that we need to go to the hospital, NOW.

Since my direction sense stinks, I asked the Dr. how do I get there from here. He was kind enough to draw a rough map, which I nabbed, and we were off. Driving to the hospital was like driving through a dream with tunnel vision. Jill received a call from Dr. Chow. When I asked what they talked about, she said, something like "Not, good things." I later learned that she didn't want me freaking out more than I already was.

We arrived safely at the hospital and proceeded to valet parking. I think that I may have actually beeped at an old lady would couldn't fit her car in the valet parking lane even though I could have perpendicular parked a Mack truck in there. I felt bad about getting upset with her. But, I just needed to get Jill to "Station 65" at Abbot Northwestern ASAP.

Once on the 6TH floor, we had to check in which was just about as frustrating as that old lady's park job. Finally though, Jill got a room.

Once in the room, we were greeted with some of the most friendly staff one could wish to encounter. Everyone is so nice.

The first order of business was to check and see if Jill's water had indeed broken due to the fact that broken water at this stage in the game is extremely bad. The test took 10 minutes to complete. Thank God, it turned out that Jill's water had not broken. Next they tested her for strep, which I assume turned out negative as well.

Somewhere in there, we met with a Dr. who said he met with Dr. Wagner the parinatologist on duty. The Dr. spoke fast, leaving little room for questions. But, he was very informative. He explained that Jill had what was commonly known as an incompetent cervix. And that the best course of action would be to "put her on her head" and perform a cervical cerclage.

Given that the doctors both agreed that the cerclage was the best course of action, we agreed to the procedure. Jill was given a super cute blue hat. We kissed. And, we told each other that we loved each other.

After what seemed to be a life time of pacing about the halls, I saw Dr. Wagner. Did I mention that he was extremely kind and could probably out stitch the old lace makers of Burano, Italy? Anyhow, he informed me that Jill had been dilated to 5-6 cm but, managed to, thankfully, get two cerclages in.

So, now that Jill's cervix has been sewn shut, what happens next?

Hopefully, nothing.

In the very best case scenario, Jill is in the hospital until the baby is full term with no early labor or further complications of any sort. Basically though, we are here until the baby is born. Each day that the baby is not born and Jill is stable is a blessing.

At this point, Jill is doing very well. Reg, Linda, and Marcy all showed up today which made Jill happy. Heather called too. My dad, brother, and sister in law have all called, wishing us the best in this unfortunate situation. Many of my co-works have let me know, "if we need anything just ask". Heck, co-workers that I didn't know prayed, are sending their thoughts and prayers. :) Linda got Jill on the church's prayer chain. In short, everyone has been great.

On the medical front, any utereran irritability/cramping/contractions seem to have stopped. Jill is off of the IV liquids and only uses the IV in her hand for antibiotics. Her back is a bit sore from being on it all of the time, from being turned upside down for the circlage, and from the spinal she had to endure. She has an appetite and can eat what she likes (you order food like room service here). She is off of the catheter, and the pulse/ox machine and is at this moment 11:30 PM finally, catching some needed ZZZZZZZZZZZZZZZZZZzzzzzz.

With love to any that read this,


Sean

Monday, April 7, 2008

23 weeks

Today, we had our 24 week appt. Sean was able to go with me. So far, he has made it to every appt and I love that he is so involved. We heard the strong heartbeat again and the Doppler also picked up some kicks. So, the little boy is doing great. Also, this was the first week that they measured my uterus and I am right on target. Dr. Jacob (another doctor in the clinic, who also delivered Erin and Jim's little girl Eleanor) said that I measured at 24 weeks. So, right on track. I think that I also gained between 6-8 lbs this past month (I can't remember exactly what my weight was last time). I guess I'm making up for not gaining between wks 16 and 20. I guess as long as the doctors aren't concerned, I won't be either.