Cade has had his own exciting news too. Last week, we had a neuro appointment and the CT showed that his ventricles are still compressed (no change from last time). This is great news and means that his shunt setting was changed again up to 200 from 170. A setting of 200 means that the shunt is essentially shut off. His body is doing all of the draining of fluid from his brain that he needs. We will follow-up in 3 months to make sure everything still looks good. Then, we will wait a year and see if everything holds steady. If so, there is a chance that the shunt can be taken out. This news really surprised me because everything that we had been told previously was that the shunt would stay in no matter what. I guess when the time comes we will have to weight the risks of another surgery with the advantages of not having the shunt.
More news from Cade is that we have started potty training. It's been about 3 weeks now and I think he is starting to revolt a little. But, he can go pee pee on the potty and has even been successful at telling us he needs to go. I guess it's just a work in progress.
Cade is continuing to learn new words. Some of the ones that surprised me are helicopter and motorcycle since they each have 4 syllables. He is so into vehicles and often sees "auntie Marcy's car" or "grandpas truck" or "Daddy's car". He still loves when Sean gets home to see his daddy and to also go play in mommy or daddy's car. He often speaks in 5-6 word sentences. It's so fun to have him tell me the story of his day. It's interesting to hear what he finds important. He's started to really love jumping (on the bed, off of the bottom stair in the basement, in the pool). We did have a visit from ECSE this month and they said that Cade was going to put them out of business. He's doing so well. The next big step is for him to move to a "big boy bed" but I'm holding off a little because his bedtimes have not been going so well this summer. He's back to wanting us in the room with him until he falls asleep. Sometimes, that isn't until 10:00 which is starting to drive me a little nuts. We are hoping, as the sun starts to go down earlier, he will start going down earlier.
We are having a great summer so far. We had the chance to spend more time at the cabin with family over the 4th, actually made it up to Chisholm for Father's day and have been busy with our ECFE friends and Amy, Evan and Ben. We've been to the zoo, have hung out with Andy, Jill and Phillip and have hung out with Marcy and JR. Marcy and JR are getting married! So, I guess he's uncle JR now. We got a chance to see my mom to celebrate her birthday and are headed to the cabin again in August to celebrate with my dad. Last week, Fran and Kathy were down for the day and we had a great time. Cade woke up the next morning saying "Fran turn the car on?" "Kathy bye bye?" We were all sad to see them leave but hopefully we will see them (and Heather) again this summer.
Little undie butt
2 comments:
Congratulations, Jill!!! (and the boys, too). Praying for a healthy pregnancy and baby. Keep the updates coming and good luck on the potty training. It's no fun (at least hasn't been for us) but he'll eventually get it. T is still in diapers/pull-ups at night. :)
Evan is sitting here reading with me & keeps saying, "Hi, Cade!" to the pics!! =)
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